Skip Navigation

Desmoid Tumors

Hi, I'm Joyce M F.

I’m just curious if anyone on here has the same cancer tumors I have of Desmoid Tumors. I’ve never posted here before in all the years I’ve been connected to this portal through my oncologist. I just thought I would start a simple post to see if any there are any unique Desmoidians like myself.

  • Post #1
  • Mon Aug 20, 2018
Hi, I'm Jason b

fighting my 6th one now. I have FAP so the surgeries I have had triggered mine(total colectomy with j pouch, then removal of the j pouch cause of the 2 8 Inch ones). Abdominal wall I had 2 surgically removed. 6.5 inches and 1 inch. 2 8 inch in pelvic opening removed with sulidac. Now on gleevec for one in the mesentery was few cm. And then I have a spider web one in the mesentery that nothing has changed.

  • Post #2
  • Sun Aug 26, 2018
Hi, I'm Nancy L H.

My daughter had a desmoid tumor two years ago. She had to undergo chemotherapy to shrink it enough to be removed. Tried Gleevec first but it did not work for her. Tumor finally got small enough to be removed. She had to go through physical therapy for many months before she could walk normally and get strong again. The tumor was in her left oblique muscle and had attached to her hip so the hipbone was scraped so that the tumor could be completely removed. We are just hoping that she does not experience another desmoid tumor.

  • Post #3
  • Sun Aug 26, 2018
I'm Rose Mary, and I'm a survivor of Lung Cancer

I have been suffering from tumor, back pains and anxiety for 8 year now , i have tried all types of pain relief pills to no avail . A friend of my did some research about medical marijuana and directed me to contact Dr Mark Donald ,which i did and decided to give him a try,place my order with him,provided him my State Texas and delivery address to my surprise i got their delivery man in my home with my parcel, today am happy and to say am now pain free . Contact him via (313) 923-7690 and email

  • Post #4
  • Fri Sep 21, 2018

Add to Discussion

Sign in or Join (free) to add to this discussion. Add to this discussion