Ankle swelling with Afinitor
ankle swelling can be symptomatic if fluid retention caused by heart failure…please get it checked by a cardiologist. We breast cancer patients have a known risk for CHF and yes, it’s one more thing to worry about-but happened to me and now I have two serious illnesses to deal with! We are overcomers, so hang in there and best of luck to you!
I was on Afinitor for 8 weeks when I got very ill; no energy, nausea, no appetite and my feet and ankles swelled twice the size. I was on 10mg. It took several weeks for the swelling to go down. I have been off of Afinitor for almost 5 months and am not sure I will take it again as My tumors are neuroendocrine [slow growing), depending on scan results in November.
I have been taking 10 mg Afinitor for 9 months. I have been fortunate not to have ankle swelling. I do have muscle cramps in my feet and legs periodically. I also get a monthly injection of Lanreotide. Both are for treatment of my Pancreatic Neuroendocrine tumors. It is not stopping growth so I have been referred to Duke University for second opinion and other treatment options. Best wishes to you in finding the right treatment.
Yes, while on Afinitor (10 mg daily for approx, 2 yrs), in addition to ankle swelling, I also experienced excruciating muscle cramps in feet and legs, especially at night. Now that I’ve been off of Afinitor for 5 weeks, ankle swelling and leg cramps have considerably lessened. I’ve also have slight progression of my Pancreatic Neuroendocrine tumors and am scheduled to start PRRT (Peptide Receptor Radioneuclide Therapy) on Sept. 28 at Mayo Clinic in Jacksonville, FL. Monthly injections of Lanreotide will continue in conjunction with the PRRT. You may want to investigate this treatment option at Duke University, or anywhere else it may be offered in your area. Good luck to you too.