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Blood Disorder Discussions

Latest Posts to Blood Disorder Discussions

Hi, I'm Charlotte C.
I am 76 diagnosed with polycythemia vera with JAK2 10 mo ago...Taking Hydroxyurea to surpress my bone marrow from making to many mutant cells...working so far...I joined facebook polycythemia vera...
  • Sat Mar 16, 2019 · Like2
Hi, I'm Michael R D.
I've had secondary poly since 2010. They were never able to figure out a cause. I get a phlebotomy every 6 weeks and that keeps my numbers in the 15 range.
  • Sat Mar 2, 2019 ·
I took Gabapentin for nerve pain for one year after my 2007 mastectomy. It was a godsend to me. A few years later I suffered from bilateral brachial neuritis, again suffering the excruciating nerve...
  • Sun Feb 3, 2019 · Like7
I started xarelto around October for a clotting disorder. The past 2 months I have been experiencing extreme vaginal bleeding during menstrual cycles accompanied by some serious clots. I went to th...
  • Tue Dec 18, 2018 ·
Hi, I'm AG girl
Well since the previous post recommends following everything your doctor says considering they take about 30 minutes of nutrition study I certainly wouldn’t trust a doctor to tell me anything about...
  • Mon Nov 26, 2018 · Like4
Hi, I'm Debra A S.
So I've had this numb spot on my left leg for about 10 years now the entire leg goes tinglly and numb, about a month ago my right hand started tingling going numb and now my whole arm goes numb thi...
  • Tue Sep 4, 2018 ·
Hi, I'm Rufus
  • Sun Sep 2, 2018 ·
Hi, I'm Marsha
I did not take Danazol or Danocrine, but I did take Prednisone at very high doses for over a year. Steriods are known to affect bone density, and I already had osteopenia. I have not heard of ste...
  • Sat Sep 1, 2018 ·
Hi, I'm JAMES V.
My experience was different. When I started taking hydrea my platlet count varied up and down as much as a million every two weeks. So my doctor prescribed anagrelide. The excessive variation ended.
  • Wed Jul 4, 2018 · Like2
Hi, I'm Kenneth B.
Has anyone ever heard of hht or known as osler weber rendu syndrome. It is very rare and I do have it and have to take iron infusions once a month.
  • Wed May 16, 2018 ·

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